Show Notes:

• What is Lupus? 
  • Lupus is a complex autoimmune disease predominantly affecting women, especially women of color. It involves multiple symptoms and organ damage, including the heart, lungs, brain, and skin. 

• What is Tom Bakewell’s motivation behind leading the Lupus Foundation? 
  • The executive director shares his connection to lupus with his mother and daughter affected by the disease, fueling his dedication to the organization's mission. 

• What are some impactful patient stories at the Lupus Foundation?
  • Highlighting stories of individuals positively impacted by the organization's support and services, including a woman who found support after a lupus diagnosis and a mother in Minnesota seeking empathy for her daughter's condition.
• How does the Lupus Foundation address the challenges faced by women? 
  • The organization focuses on women, especially women of color, through diverse representation on the board and women-centric support groups. 

• What are the varied support programs offered by the Lupus Foundation?
  • Introduction to programs like the Lupus Buddy Program, health conferences, virtual doctor visits, and support groups aimed at providing comprehensive help to lupus patients. 

• What is ‘The Lupus Buddy Program’? 
  • The Lupus Buddy Program connects newly diagnosed and experienced lupus patients for support and mentorship. 

• What are the exciting developments in Lupus Treatment? 
  • Discuss new clinical treatments and technologies targeting lupus and efforts to bridge the gap between patients and pharmaceutical trials. 

• What are the challenges with Insurance for Lupus Patients? 
  • Addressing the difficulties lupus patients face with insurance companies and the organization's role in facilitating continuous communication for better care.